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Williams Syndrome/gone too soon

My little guy has a rare birth defect called Williams Syndrome. It comes with a whole slew of physical, mental & emotional delays/disabilities. Unfortunately, most have serious heart defects along with it. There is growing info and understanding of the disease and through email & social media, families are able to connect with each other and share info, advice, etc. So we are also like extended family. This morning my heart is breaking as another family has lost their little girl to complications with WS. I'm asking for prayer for the whole WS community but especially the Griffith family today. Thank you all so much and God bless!!